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Nearly 300 Galway families avail of special facilities beside Children’s Hospital

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Connacht rugby player Jake Heenan, with Saoirse and Luke McEvoy and Ailbhe and Evan Canavan, promoting the Walk4Families 5k which takes place on Salthill Prom on Saturday week.

For 291 Galway families, the Ronald McDonald House beside Crumlin Children’s Hospital has been a home away from home during the most stressful period of their lives.

Grateful families who have availed of the facility since it opened 12 years ago are now fundraising to build a new €16m accommodation complex on the site of the new children’s hospital at St James’s Hospital, due to open in 2020.

The Donald family from Roscahill have lived in the Ronald McDonald House for five months over the past three years since twins Cate and Ciarán were born.

Cate was diagnosed at 20 weeks’ gestation with complex congenital heart disease. At 30 weeks, mum Caroline had to rent an apartment in Dublin to ensure she would deliver in Dublin where more specialised medics were based.

A week after Cate was born at 36 weeks in July 2013, she underwent open heart surgery, weighing just 4.5 pounds.

Ciarán had a few problems and was kept in the High Dependency Unit in the Coombe, while Cate was born in the Coombe but transferred immediately to Our Lady’s Children’s Hospital in Crumlin.

“We moved into the Ronald McDonald House with our newborn baby and took it in turns to go from the house to the ward which was a stone’s throw away. My baby was dying and you didn’t want to leave the hospital grounds, but at the same time you have to mind the other kids. We had no friends or family in Dublin – it was an absolutely crucial service,” recalls Caroline.

“We were back in again for a second open heart major surgery the following January. At night you’re so tired after spending 17/18 hours on the ward, so emotionally drained as all the kids in there are very, very sick.

“You’re shook to the core. Here was a place you’d come back to where you’d have a cooked dinner, you could get the laundry done, you wouldn’t have to go off grocery shopping.”

Staff and volunteers go out of their way to offer support to stressed families, organising special occasion evenings such as candlelit dinners on Valentine’s Day and beauty therapies on Mother’s Day to give a little boost.

An outdoor and indoor play area allows siblings to retain some sort of normalcy during the hospital stay while families have access to a communal lounge and dining room.

Cate returned for her third major surgery this year, with some more minor procedures earmarked for the near future. She attends University Hospital Galway once a week with regular check-ups in Dublin. Eventually she will have to undergo a heart transplant.

Baby Patrick was born within a year of the twins so it’s been all hands on deck for the Donalds.

For more, read this week’s Connacht Tribune.

 

Connacht Tribune

West has lower cancer survival rates than rest

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Significant state investment is required to address ‘shocking’ inequalities that leave cancer patients in the West at greater risk of succumbing to the disease.

A meeting of Regional Health Forum West heard that survival rates for breast, lung and colorectal cancers than the national average, and with the most deprived quintile of the population, the West’s residents faced poorer outcomes from a cancer diagnosis.

For breast cancer patients, the five-year survival rate was 80% in the West versus 85% nationally; for lung cancer patients it was 16.7% in the west against a 19.5% national survival rate; and in the West’s colorectal cancer patients, there was a 62.6% survival rate where the national average was 63.1%.

These startling statistics were provided in answer to a question from Ballinasloe-based Cllr Evelyn Parsons (Ind) who said it was yet another reminder that cancer treatment infrastructure in the West was in dire need of improvement.

“The situation is pretty stark. In the Western Regional Health Forum area, we have the highest incidence of deprivation and the highest health inequalities because of that – we have the highest incidences of cancer nationally because of that,” said Cllr Parsons, who is also a general practitioner.

In details provided by CEO of Saolta Health Care Group, which operates Galway’s hospitals, it was stated that a number of factors were impacting on patient outcomes.

Get the full story in this week’s Connacht Tribune, on sale in shops now, or you can download the digital edition from www.connachttribune.ie. You can also download our Connacht Tribune App from Apple’s App Store or get the Android Version from Google Play.

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Connacht Tribune

Marathon Man plans to call a halt – but not before he hits 160 races

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Loughrea’s Marathon Man Jarlath Fitzgerald.

On the eve of completing his 150th marathon, an odyssey that has taken him across 53 countries, Loughrea’s Marathon Man has announced that he is planning to hang up his running shoes.

But not before Jarlath Fitzgerald completes another ten races, making it 160 marathons on the occasion of his 60th birthday.

“I want to draw the line in 2026. I turn 57 in October and when I reach 60 it’s the finishing line. The longer races are taking it out of me. I did 20 miles there two weeks ago and didn’t feel good. It’s getting harder,” he reveals.

“I’ve arthritis in both hips and there’s wear and tear in the knees.”

We speak as he is about to head out for a run before his shift in Supervalu Loughrea. Despite his physical complaints, he still clocks up 30 miles every second week and generally runs four days a week.

Jarlath receives injections to his left hip to keep the pain at bay while running on the road.

To give his joints a break, during the winter he runs cross country and often does a five-mile trek around Kylebrack Wood.

He is planning on running his 150th marathon in Cork on June 4, where a group of 20 made up of work colleagues, friends and running mates from Loughrea Athletics Club will join him.

Some are doing the 10k, others are doing the half marathon, but all will be there on the finishing line to cheer him on in the phenomenal achievement.

Get the full story in this week’s Connacht Tribune, on sale in shops now, or you can download the digital edition from www.connachttribune.ie. You can also download our Connacht Tribune App from Apple’s App Store or get the Android Version from Google Play.

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CITY TRIBUNE

Galway ‘masterplan’ needed to tackle housing and transport crises

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From the Galway City Tribune – An impassioned plea for a ‘masterplan’ that would guide Galway City into the future has been made in the Dáil. Galway West TD Catherine Connolly stated this week that there needed to be an all-inclusive approach with “vision and leadership” in order to build a sustainable city.

Deputy Connolly spoke at length at the crisis surrounding traffic and housing in Galway city and said that not all of the blame could be laid at the door of the local authority.

She said that her preference would be the provision of light rail as the main form of public transport, but that this would have to be driven by the government.

“I sat on the local council for 17 years and despaired at all of the solutions going down one road, metaphorically and literally. In 2005 we put Park & Ride into the development plan, but that has not been rolled out. A 2016 transport strategy was outdated at the time and still has not been updated.

“Due to the housing crisis in the city, a task force was set up in 2019. Not a single report or analysis has been published on the cause of the crisis,” added Deputy Connolly.

She then referred to a report from the Land Development Agency (LDA) that identified lands suitable for the provision of housing. But she said that two-thirds of these had significant problems and a large portion was in Merlin Park University Hospital which, she said, would never have housing built on it.

In response, Minister Simon Harris spoke of the continuing job investment in the city and also in higher education, which is his portfolio.

But turning his attention to traffic congestion, he accepted that there were “real issues” when it came to transport, mobility and accessibility around Galway.

“We share the view that we need a Park & Ride facility and I understand there are also Bus Connects plans.

“I also suggest that the City Council reflect on her comments. I am proud to be in a Government that is providing unparalleled levels of investment to local authorities and unparalleled opportunities for local authorities to draw down,” he said.

Then Minister Harris referred to the controversial Galway City Outer Ring Road which he said was “struck down by An Bord Pleanála”, despite a lot of energy having been put into that project.

However, Deputy Connolly picked up on this and pointed out that An Bord Pleanála did not say ‘No’ to the ring road.

“The High Court said ‘No’ to the ring road because An Bord Pleanála acknowledged it failed utterly to consider climate change and our climate change obligations.

“That tells us something about An Bord Pleanála and the management that submitted such a plan.”

In the end, Minister Harris agreed that there needed to be a masterplan for Galway City.

“I suggest it is for the local authority to come up with a vision and then work with the Government to try to fund and implement that.”

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