CITY TRIBUNE
Galway woman reveals reality of living with Multiple Sclerosis
It might seem strange to describe a diagnosis of Multiple Sclerosis as something of a relief – but for one Galway woman hit with just that news, it meant she finally had a name for the problem . . . and a journey back to stability.
Ann Hanley’s initial symptoms started ten years before her diagnosis of MS in October 2015.
“I was having symptoms such as some balance issue, I had unusual pains throughout my body over a ten-year period and was in and out of hospital,” she says.
And that meant frequent hospital visits over that ten-year period for the Galway City woman.
“Sometimes I was admitted twice in a year, I would be sent home with steroids and be somewhat okay, but that was short lived – and within six months something else would present itself,” she says.
But in September 2015, Ann ended up in hospital with what she describes as “like I had a stroke down the right side of my body”.
“I was put on steroids again and sent home. I was only home three days when I was back in hospital for a month. When I was let home, it was again just three days until I was back in hospital.”
All of that meant that, when Ann was diagnosed in October 2015, she was actually relieved to finally know what was wrong with her.
“I knew that I had something seriously wrong with me and nobody could tell me what it was. It was constant repairing every problem that would arise, for example I had bowel surgery.”
“When I was diagnosed there was great relief in it, because I knew I had a name, and I knew there was a treatment, a stabilisation,” added Ann.
Multiple sclerosis (MS) is an auto immune disease that effects an estimated 9,000 Irish people today, according to MS Ireland. The disease can cause all parts of the nervous system to be attacked, resulting in many symptoms such as, visual problems, balancing issues, muscle problems and depression.
But even after diagnosis, Ann did not immediately see herself as someone with a disability.
“I remember a nurse gave me forms for different organizations they needed me to apply to for different things. When the word ‘disability’ had been used, I looked over my shoulder to see who she was talking to because I didn’t see that as me,” she says.
Ann feels that there is huge importance in getting diagnosis as early as possible as it is best to start the modifying treatment as early as possible.
“We need very much to be listened to. We are not attention-seekers – and at the time I felt people thought I was looking for attention” said Ann.
Ann said that given her busy work as a hygiene manager, and as mother of three daughters, she neglected herself and put off getting things checked.
“I remember I was working at the hospital and I would be standing at the Galway hospital swivel door, all dressed up, folder in my arm and yet I didn’t know how to tell myself how to get to the other side,” she says.
One knock-on of MS has seen Ann lose much of her self-confidence.
“I cannot manage crowds, I have such fears of falling. I walk around being eaten up with every step I take thinking am I going to fall.”
But she says that the main thing she feels is needed for people with MS is better awareness of what they are going through.
“There are things people say that upset me, such as ‘you don’t look sick’, ‘you should try this diet’, ‘stop using MS as an excuse’.”
And as to what inspires her to speak about her illness and its issues, she doesn’t hesitate.
“I feel you have to be your own advocate. I do have great friends and family and would be happy for anyone with MS to contact me to give them support.”
From the Galway City Tribune – An impassioned plea for a ‘masterplan’ that would guide Galway City into the future has been made in the Dáil. Galway West TD Catherine Connolly stated this week that there needed to be an all-inclusive approach with “vision and leadership” in order to build a sustainable city.
Deputy Connolly spoke at length at the crisis surrounding traffic and housing in Galway city and said that not all of the blame could be laid at the door of the local authority.
She said that her preference would be the provision of light rail as the main form of public transport, but that this would have to be driven by the government.
“I sat on the local council for 17 years and despaired at all of the solutions going down one road, metaphorically and literally. In 2005 we put Park & Ride into the development plan, but that has not been rolled out. A 2016 transport strategy was outdated at the time and still has not been updated.
“Due to the housing crisis in the city, a task force was set up in 2019. Not a single report or analysis has been published on the cause of the crisis,” added Deputy Connolly.
She then referred to a report from the Land Development Agency (LDA) that identified lands suitable for the provision of housing. But she said that two-thirds of these had significant problems and a large portion was in Merlin Park University Hospital which, she said, would never have housing built on it.
In response, Minister Simon Harris spoke of the continuing job investment in the city and also in higher education, which is his portfolio.
But turning his attention to traffic congestion, he accepted that there were “real issues” when it came to transport, mobility and accessibility around Galway.
“We share the view that we need a Park & Ride facility and I understand there are also Bus Connects plans.
“I also suggest that the City Council reflect on her comments. I am proud to be in a Government that is providing unparalleled levels of investment to local authorities and unparalleled opportunities for local authorities to draw down,” he said.
Then Minister Harris referred to the controversial Galway City Outer Ring Road which he said was “struck down by An Bord Pleanála”, despite a lot of energy having been put into that project.
However, Deputy Connolly picked up on this and pointed out that An Bord Pleanála did not say ‘No’ to the ring road.
“The High Court said ‘No’ to the ring road because An Bord Pleanála acknowledged it failed utterly to consider climate change and our climate change obligations.
“That tells us something about An Bord Pleanála and the management that submitted such a plan.”
In the end, Minister Harris agreed that there needed to be a masterplan for Galway City.
“I suggest it is for the local authority to come up with a vision and then work with the Government to try to fund and implement that.”
The new Salmon Weir pedestrian and cycle bridge will be officially opened to the public next Friday, May 26.
Work on the €10 million bridge got underway in April 2022, before the main structure was hoisted into place in early December.
A lunchtime tape-cutting ceremony will take place on Friday, as the first pedestrians and cyclists traverse the as-yet-unnamed bridge.
The Chief Executive of Galway City Council, Brendan McGrath, previously said the bridge, once opened, would remove existing conflicts between pedestrians, cyclists and traffic “as well as facilitating the Cross-City Link public transport corridor over the existing 200-year-old bridge”.
The naming of the new bridge has been under discussion by the Council’s Civic Commemorations Committee since late last year.
One name that has been in the mix for some time is that of the first woman in Europe to graduate with an engineering degree – Alice Perry.
Ms Perry, who was from Wellpark, graduated from Queen’s College Galway (now University of Galway) in 1906. The university’s engineering building is named in her honour.
The bridge was built by Jons Civil Engineering firm in County Meath and was assembled off-site before being transported to Galway. Funding for the project was provided in full by the National Transport Authority and the European Regional Development Fund.
(Photo: Sheila Gallagher captured the city’s new pedestrian footbridge being raised on the south side of the Salmon Weir Bridge in December. It will officially open next Friday, May 26).
From the Galway City Tribune – Minister of State for Local Government and Planning, Kieran O’Donnell was labelled a “disgrace” for overturning councillors’ decisions to rezone land in the new City Development Plan.
Minister O’Donnell (pictured) confirmed in a letter to Council Chief Executive Brendan McGrath last week that he was reversing 25 material alternations made by councillors to the CDP 2023-29. He made the decision on the advice of Office of Planning Regulator (OPR).
Minister O’Donnell directed that 14 land parcels that were subject to land-use zoning changes by councillors as part of the Material Alterations to the Draft CDP should be reversed.
He directed that a further 11 land parcels in the city should become “unzoned”.
The Minister found that the CDP had not been made in a manner consistent with recommendations of the OPR, which required specific changes to the plan to ensure consistency with the national planning laws and guidelines.
At last week’s Council meeting Cllr Eddie Hoare (FG) asked for clarity on the process by which councillors could rezone the lands that had been changed by the Minister’s direction.
Cllr Declan McDonnell said, “What he [Minister O’Donnell] has done is an absolute disgrace”.
And he asked: “Do we have to have another development plan meeting to deal with it?”
Both Cllrs Hoare and McDonnell wondered what would become of the lands that were rezoned or unzoned by the ministerial direction.
Mr McGrath said the Council had put forward an argument in favour of retaining the material alterations in the plan, but ultimately the Minister sided with OPR.
He said if councillors want to make alterations to the new plan, they could go through the process of making a material alteration but this was lengthy.
The Save Roscam Peninsula campaign welcomed the Minister’s decision.
In a statement to the Galway City Tribune, it said the direction would mean the Roscam village area on the Roscam Peninsula will be unzoned and a number of land parcels would revert back to agriculture/high amenity.
A spokesperson for the campaign said: “the material alterations made by city councillors following lobbying by developers continued the long-standing practice of councillors facilitating a developer-led plan rather than an evidence- and policy-based plan that meets the needs of the city.
“The Minister’s direction is an important step in restoring confidence in the planning system. It is clear from the City Council’s own evidence on future housing projections that there was no requirement to zone these lands for residential purposes in order to meet the needs of the targeted population increase up to 2029,” the spokesperson added.
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